This blog is dedicated to my son Ryan McGee who passed away August 11th 2013 from complications of Chiari Malformation. In his death he gave life to others including myself by donating his organs. Please visit Ryan's facebook page to learn more about Chiari and help raise awareness.https://www.facebook.com/RyanMcgeechiariangel?ref=hl#
chiari angel
Saturday, April 27, 2013
I keep telling myself I am so close I can't give up now. I've had to give myself a lot of pep talks this past week. Last Tuesday night I ended up in the er again when I became ill...dizzy,uncontrollable chills and I almost passed out. Long story short...it is very easy to quickly become dehydrated when you have CKD. I haven't been able to eat very much because of nausea that just won't quit. The doctors increased my nausea meds. but it only works for a short time and then it's back. We thought at first it was just a stomach virus but that doesn't seem to be the case. I have never cared for eggs very much but now an egg and dry toast is just about all I can handle without becoming ill. Sleep is a welcome escape and I am doing a lot of that. A nurse who trained in a dialysis unit told me that kidney patients are some of the strongest and most stubborn people ever. Well, I'm not feeling very strong right now...but I promise you this...I will not give up.Because things are moving along rather quickly now with a possible transplant by summer maybe June! I am still guarded by fear of disappointment. But I have to hold on to something right? I get so afraid sometimes and have decided to bite the bullet and ask my doctor for a little something to calm my nerves. I think I deserve at least to have peace of mind. Things change so quickly with this disease...hour to hour ...moment to moment. I never know what to expect when I wake up in the morning or how my day is going to end up. But I guess that could be said for anyone. That is life.
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