chiari angel

chiari angel

Sunday, June 23, 2013

Not much happening in way of getting a kidney transplant any time soon. We have hit a snag. My cousin who has gone through a good part of the tests to be my donor has been ill and unable to complete the final testing. We have been informed by the transplant team that because both his mother and mine (sisters) had diabetes he could be ineligible to donate. Still,as soon as he is feeling better he is going to go ahead and try anyway. I am just taking it a day at a time. Besides, I am concentrating on my son right now,while trying to stay as healthy as possible. I have learned a lot about Ryan's diagnosis of Chiari and it has not been as easy a recovery as I thought it would be. I now know there is no cure for CM and is a debilitating illness. The shunt that was placed to drain his cerebral spinal fluid needs ongoing adjustments and is only working half the time.He is in tremendous pain a lot of the time and I am not sure what our next step will be until his  doctors appointment next week. I have to be completely honest and admit that lately I have been so angry and have been asking God why? I am ashamed to admit that some days I have very little faith. But then I realize that God has been with me through it all and pulled me through some really scary moments. I don't know how I would have made it this far without believing in Him. Even though my faith is weak I believe God will strengthen me. 

 The Lord is the everlasting God, the Creator of the ends of the earth. He will not grow tired or weary, and his understanding no one can fathom. He gives strength to the weary and increases the power of the weak. Even youths grow tired and weary, and young men stumble and fall; but those who hope in the Lord will renew their strength. They will soar on wings like eagles; they will run and not grow weary, they will walk and not be faint. (Isaiah 40:28-31)

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